Wednesday, December 12, 2012

Hello everyone,

     First of all, the Clarks and Karen specifically wishes everyone a very Merry Christmas and Happy New Year.

     Since the last writing, Karen continues to receive her monthly Xgeva shot and has her port cleaned as well as blood withdrawn to monitor her blood levels.  On December 4, 2012, Karen saw her oncologist and he was delighted with her blood results as they have been well within the acceptable limits.  He did advise Karen that her cancer marker went up a few points, but he was not concerned about it.  Additionally, he advised Karen that she would have another PET scan in February 2013.  Karen was not particularly happy about another PET scan but knows that it is necessary. 

    When Karen received her Xgeva shot in November, one of the infusion nurse (K) told Karen that she was retiring at the end of the year.  In fact, this particular nurse, who Karen has labeled as the "troublemaker," last day will be on December 28 and she told Karen that she would make it a point to handle Karen's issues (Xgeva shot, port cleaning, etc) that day.  Karen was concerned that the shot will probably be given in the buttock instead of the usual place, the arm.  As in the previous writings on this blog, this particular nurse (K) was given some socks by Karen, her mom and me.  When Karen went in for her shot in November, this nurse (K) was wearing a different sock on her feet.  Nurse K was so excited that she proudly came over, held her pant legs up and showed them to Karen and her mom.  Karen started laughing and told nurse K that she had an identical pair like them at home.  To say the least, not only were the nurses laughing but so were some of the other patients and their caregivers.  Although Karen kept her laughter somewhat muffled, you guessed it, the head nurse came out and gave her stern look at Karen.  Oh well,  Karen can hardly wait to see what happens at the end of this month when she goes in for her shot.  Maybe the head nurse will be on a Christmas vacation.

     For those of you wanting to know if the nurses keep items that they receive from their patients in the infusion center and the doctors' office, they most certainly do.  The artificial bouquets of flowers crafted by me and Karen in the latter part of June are still proudly displayed in the center and the doctors' office. 

     Everyday Karen is making progress.  Her hair is slowly growing back.  Karen is riding her stationary bike everyday except on Sunday.  She is able to do yard work (cutting the lawn, picking up leaves, etc), washed her vehicles after 10 months, and do some minor woodworking.  In fact, she is making a woodworking project for nurse K for her retirement.  Anyhow, Karen and her Mom are living one day at a time and thank God for their simple lives and most definitely their family and friends. 

Tip of the Blog:  Remember to face each day with certainty and sleep without fear as one of God's angel is standing near you. 

Monday, October 29, 2012

A big H-E-L-L-O to all of you,

First of all, I will apologize to all of you for not keeping the blog up-to-date.  Following Karen's last oncologist's visit in September, Karen's family and friends gathered together on September 16th for a birthday party.  Karen's Mom celebrated her 90th birthday with family and friends.  Everybody at the party had a great time and shared many stories with Karen's Mom.  Although she won't admit, Mom had a great time with everybody, including the friends from the old neighborhood in Los Angeles.  She certainly enjoyed the food, especially the three birthday cakes as she did sample each one of them.   As stated, the food and desserts were delicious and plentiful.  Karen and her Mom had plenty of leftovers to last a week.

At the end of September, Karen had her Xgeva shot, her port cleaned and the monthly blood tests.  Karen's blood results were well within the appropriate ranges.  Karen and her Mom had a surprised visit from one of Karen's cousin (Mom's niece) from the east coast, who spent three days with them.  There was a lot of laughter shared, good eats, and some great pictures taken of them, that unfortunately has not made it on YouTube.  Ha, ha, ha.

The month of October has been relatively quiet for Karen and her Mom.  Karen had her monthly Xgeva shot, port cleaning and blood tests on the 26th.  Karen was advised by the nurse that her blood results looked great and well within the appropriate ranges.  Additionally, Karen was told that her cancer marker was at 127, which was the September reading.  As you can imagine, Karen was delighted with the news.  Karen still has neuropathy in her hands and fingers.  Her hair on her head is s-l-o-w-l-y growing back white and straight.

If you have been following this blog, you know that there is always a humorous story during Karen's visit to the infusion center.  One of the nurses at the infusion center enjoys wearing fashionable socks.   Prior to her visit to the center, Karen and her youngest sister, Margaret, had purchased two pairs of socks.  Now these socks, one had a sheep pattern in blue and pink colors and the other with monkeys with red and brown colors, are vacuum sealed in plastic to look like a little sock.  When you remove the plastic and place these socks in water, they expand.  They are made of cotton and one size fits all.   Anyhow, when Karen arrived at the infusion center on the 26th, luckily for her she got the nurse, K, who wears the fashionable socks.  Karen told K that she had a gift for her.  After sitting down, Karen took out the little socks and gave them to K.  K was absolutely delighted with the socks.  After K cleaned the port and took Karen's blood, K showed the other nurses the little gift she had received.  As Karen sat in the chair, the other nurses paraded by and lifted their pant legs to show off their fashionable socks.  Who would a thought that the infusion center nurses all wore fashionable socks and that Karen would be judging them on who had the cutest ones on.  Some had kittens, Winnie the Pooh, Halloween theme socks, etc.  Yes, the head nurse came out to see what all the ruckus was.  Karen, however, kept her laughter to a minimum.  To say the least, Karen, her mom and all the nurses, except the head nurse, all had a good laugh over the socks.  Sometimes, we never know what brings a little laughter into our lives. 

 Tip of this blog: Take a few minutes out of each of your days to really enjoy your life and all its wonderful blessings.  

Thursday, September 6, 2012

Hello one and all,

We apologize for the delay in the blog post.  Karen had her Xgeva shot, blood tests and her port cleaned last Friday (08/31).  Her blood counts looked very good and were well within the appropriate ranges/values.  Yesterday, Karen saw her oncologist.  At this medical appointment, Karen's oncologist finally shared the results of her PET Scan from July 24, 2012.  "Yippee" does not adequately describe how Karen and her mom felt after looking at the images from the first PET scan Karen had in February and comparing it with the scan in July.   The doctor was extremely pleased with the results as it showed the chemotherapy treatments had fought the cancer except a small area in Karen's right humerus bone.  The doctor advised Karen to continue to do what she is doing (exercising, food diet and vitamin intake, prescribed medications, etc.).  To say the least,  Karen and her mom were very thankful to God, the doctors, the nurses/caregivers and the wonderful prayers her family and friends have been saying.   Karen also inquired about her cancer markers and found that they were initially 300 and are now at 142.  The doctor indicated that he would like to see the marker ideally at 40, but explained that 142 was okay as long as the number did not increase.   Karen will continue to receive her monthly Xgeva shot and take her daily hormonal pill.   Upon leaving the facility, Karen had the doctor and the nurses laughing again as she shared one of her funny stories with the staff.   Karen will have her next Xgeva shot at the end of September and will see the doctor in December.  Karen was given the go ahead to see her eye doctor and dentist without restrictions.  Even with the wonderful news, Karen's journey, however, continues on.

On another positive note, Karen's mom will be 90 on the 7th of September.  The family will be hosting her 90th birthday party on the 16th.  Contrary to popular belief, Karen's mom is looking forward to her 90th birthday celebration on the 7th and again on the 16th. 

As Karen's journey continues on, Karen and her family members realized that maintaining a journal, log and/or blog was vitally important and very helpful in many respects.  In May, this became especially helpful when Karen's insurance carrier disputed a medical procedure, which had occurred in February.  Additionally, there are other medical records that the patient should keep (i.e. PET Scans, blood test results, brochures on cancer, etc.).   In Karen case, every time she had blood tests conducted, the infusion staff provided her copy so she could see where her blood counts were and could compare them.  Karen keeps a daily journal which records items such her pain issues, doctor/medical visits, items accomplished, exercises, etc.  When Karen initially started her first chemo sessions, Karen and her sister would take her journal/medical records with them.  The nursing staff were very impressed with the binder they showed it to other patients to assist them in their journeys.  Anyhow, these are our words of wisdom as you go through your journey. 

Once again, thanks again for your prayers and positive thoughts for Karen and her family.

TipOur gentle yet strong angelic friends are the defenders of peace, joy and love in this world. 




Wednesday, August 22, 2012

Welcome one and all to Chippers Journey,

As written in the previous blog of August 7, 2012, the authors of this blog will continue to update you about Karen's status and will include some helpful insights in dealing/coping/understanding the issues associated with cancer.  We will also try to keep the humor in our writings.  That old adage, "Laughter is the best medicine" definitely helped Karen and her family coped with her cancer.  Of course, Karen's hearty laughter was somewhat limited as the cancer had attacked her lungs as well as many other parts of her anatomy.  Being the "iron horse" that she is, she didn't let her limited lung capacity dampen her laughter especially at the infusion center, the doctor's office or in her home.    

Well for the update, Karen is slowly improving.  She is losing the "cue ball" look, as her hair is coming back on her head as well as the rest of her body.  Which means, she'll have to start purchasing the necessary hair removal products again.  Karen was hoping her hair growth wouldn't happen until the end of the year.  Karen is back to riding her stationary bike and doing arm exercises on a daily basis.  She still has the neuropathy in her hands, but it is slowly improving.  Her fingernails, however, are not growing back as fast as her hair.  Karen is scheduled for her next Xgeva shot on Friday (08/31) and will have her port cleaned as well as the necessary blood tests.  She will see her oncologist on the following Wed.  Hopefully, all will go well for her.  In the meantime, Karen and the rest of her siblings are planning a 90th birthday celebration for their Mom, who will turn 90 in Sept.
Happy 90th Birthday, Mom.  We all love you.

Now we can change the subject.  Are there any lessons to be learned when someone you know and love is diagnosed with cancer?  The answer is a resounding yes, but the hard part is figuring out what the lesson to be learned is.  To start off with, when Karen received the news that she had Stage 4 breast cancer and underwent the different medical tests, she truly believed she had been hit by the imaginary "Mack truck."  However, first and foremost, Karen found her inner peace and ability to cope with her diagnosis with her daily prayers to God and the tremendous support she received from family members and friends.  Additionally, for those of you unsure what you can do initially for the individual who has cancer, the first priority on your list of helpful items should be prayers.  With all the prayers said, Karen was able to carry this cross as well as other issues that came her way.  Like they say, prayers are indeed powerful.   In addition to prayers, Karen's mom related, "When dealing with a life changing event, besides prayers, a good night sleep is also necessary."  Mom's words of wisdom are so true as tomorrow definitely brings a new and refreshing perspective to the various life's trials we have or will encounter.  Thank you for reading this blog and may the good Lord bless you and your family today and tomorrow. 

Tip of the blog:  As one of my angelic friend, please share your beautiful smile with someone today.

Tuesday, August 7, 2012

Greetings to all of the readers/followers of Chippers Journey Blog,

Since the last posting, Karen has not heard anything from her oncologist regarding the PET scan on July 24.  Fortunately, Karen is not fretting over the results of the latest PET scan.  Karen had her monthly Xgeva shot on Friday (08/03), her port cleaned and blood drawn.  When Karen and her mom arrived at the infusion center on Aug. 3rd, it was standing room only in the waiting room.  In all the months that Karen had been going to the infusion center, she had never seen it so busy.  When the nurse (Julie) called for Karen she greeted Karen with a smile and remarked, "We have your sear ready for you."  Karen was somewhat puzzled by this comment because when you walk into the infusion center the nurses generally ask the patient where they would like to sit and let you pick your seat.  As Karen and her mom walked in, Julie pointed to the seat in the corner.  For those of you that ever got in trouble at home or school and ultimately had to quietly sit in the corner, you probably understand the significance of sitting in the corner.  Karen started to laughed and walked proudly to her seat.  Over the months that Karen has been going to the infusion center, Karen has been labeled a "troublemaker" by the nursing staff because of her laughter and humor.  Karen always has a funny story to share with the nurse(s).  This particular day was no exception.  Karen does, however, wait until the nurse has put the needle in her port before the stories began.  When it came time for the Xgeva shot, Julie asked Karen what arm.  Before Karen could respond one of the other nurses said, "Give it to her in her butt."  Needless to say, the laughter began not only with the nurses, Karen and her mother, but also some of the patients receiving their chemo treatments.  Karen finally chose to have the shot in her left arm.  A little side note, Karen's blood results were well within the appropriate ranges making her day. 

Over the past week, Karen and her mom have noticed that Karen is slowly losing her "cue ball" look.  Please understand that Karen has never been upset about losing her hair because of the chemotherapy.  However, Karen has read and been told that sometimes when the hair grows back, it could be a different color, more wavy, not straight, etc.  Excited about a different look, Karen did pray to God asking for curly brown hair.  So far it appears her prayers have been answered as the hair growing on her head is "white and straight (the mohawk look)."  Never let it be said that God does not have a sense of humor.  Most certainly, God must have been on vacation when Karen's hair request came in.  Ha Ha Ha!!!

Karen is feeling better and is now riding her stationary bike and performing breathing and arm exercises on a daily basis.  Karen is sill dealing with the neuropathy in her hands and the occasional pain in her lower back and ribcage. 

Since Karen has completed her chemo and is scheduled for monthly shots and doctor visits, we are going to provide an update to the blog at least every two weeks on the same day.  The next posting to this blog will probably be on Aug. 21.  It is our hope in the future blogs to provide some helpful insights from the perspective of the patient, family member, caregiver, relative and/or friend while coping/dealing with the issues of cancer.

Tip of the blog: Today enjoy your life and give a hug to all your angelic friends.      





Monday, July 30, 2012

A big HELLO to family members, relatives, friends and other readers of this blog,

Well, Karen had her second PET scan last Tuesday (07/24).  Unlike the first one, this scan did not take as long.  When Karen advised the nurse that the first scan took at least 45 minutes, the nurse told Karen it would only take 15 to 20 minutes.  Because Karen already had a PET scan done making her an expert on the scanning procedures, Karen reiterated her concern about the time frame.  Lo and behold, this scan only took about 20 minutes.  When completed the nurse commented to Karen that indeed Karen was a tall woman.   As of this writing, Karen has not heard from her oncologist regarding the results (readings).  Although Karen was sitting on "pins and needles" regarding the outcome, she has chosen not to worry about it anymore.  No news might indeed be "good news." 

Karen did see her oncologist on Wednesday (07/18).   As most of you know, prior to the doctor seeing you, the nursing staff generally perform certain functions such as taking your BP, pulse rate, etc.  As usual, Karen was weighed and walked back to exam room to have her BP taken.  Now the nurses are terrific people and oftentimes very serious.  When Karen sat down in the chair to have her BP taken, the nurse put the BP cup on Karen's left arm and remarked to Karen, "Is this the right?"  Thinking that she was being intellectually and mentally challenged, Karen told the nurse, "No, that's my left arm."  Following Karen's comments, the nurse, and Karen and her mom all began to laugh.  Unfortunately for Karen her BP was being taken while all were laughing.  Karen's BP was slightly elevated.  Oh well, the nurse left the room still laughing as Karen and her mom were still laughing when the doctor came in.  Upon leaving, the nurse told Karen that she indeed was funny and had made her day.  At the conclusion of the doctor's visit, Karen was now placed on a hormonal pill regime.

When Karen finally picked up her new prescription (hormonal pill) two days after her doctor's visit, you guessed it, she was required to have a consultation with the pharmacist.  Now, this pill is a 1 mg tablet and the pharmacist informed Karen that it is prescribed to women only who have breast cancer. (Sorry guys it is not for men).  The two items the pharmacist discussed with Karen were the likelihood of experiencing "hot flashes" again and the time duration of taking this medication (5 years).  Karen asked the pharmacist if she could tell the difference between a hot flash versus the triple digit weather the area was currently having.  The pharmacist just laughed.  Anyhow, Karen read more about the medication and discovered that the side effects (which according to the clinical studies affected only 5 to 10% of women taking it) were equal to or worse than the chemotherapy treatment Karen had received.  Oh well, Karen  is waiting for the hot flashes to occur.  Yes, Karen has talked to other females regarding the signs/symptoms of a hot flash.  One item specifically reiterated by those women who have had hot flashes was taking all of their clothes off and standing in front of a fan to cool off and/or down.   Karen assumed that this stripping maneuver occurred in  the privacy of their homes.  Ha, ha, ha. 

Even though Karen had her last infusion in June, Karen is experiencing the healing process or as she puts it, going through chemo withdrawal.  Her days are usually upbeat and Karen is slowly getting back to her exercise routine (riding her stationary bike, etc.).  Karen is learning to deal with some of her limitations (neuropathy in her hands, the pain in her ribcage, etc).  Karen and her mom have begun to resume some of their routines together (grocery shopping, banking, etc).

Anyhow, thank you to everybody who has kept Karen and her family in your thoughts and prayers while reading this blog.  Without the prayers and positive thoughts, the journey would have been more difficult for Karen and her family.

Tip of this blog:  Life's journey may be long and arduous but you'll never walk alone when you believe in your angelic friends., 



Tuesday, July 10, 2012

Hello one and all,

As you know, Marghi, the wonderful caregiver, returned home on July 1, 2012.  Karen and Mom are doing okay and getting out to do grocery shopping and other chores around the house.  They are living one day at a time.  During the first week of July, Marghi had to learn a new computer system at her place of employment (40 hours).  Like she said, it's hard to teach "an old horse" new tricks. However, at the conclusion of the class, she thoroughly enjoyed it.

Ironically, last Thursday, (07/05) Karen was scheduled to renew hew driver's license at the local DMV office.  Karen drove mom and herself to DMV and stood in line to be told she was to early for her scheduled appointment.  The clerk told Karen to come back and stand in line at 9:15 AM.  Karen went back and stood in line at 9:15AM for her 9:20 AM appointment.  Unfortunately, the clerk was dealing with an elderly gentleman for over 20 minutes and the waiting line continue to grow longer.  Eventually, another clerk came up and called out Karen's last name.  When Karen answered up, the people in line of ahead of Karen were upset, but the clerk handling the appointment line nodded that it was okay for Karen to leave the line and proceed to the other clerk's window.  Karen provided the necessary documentation and paid the appropriate fees to the clerk and past the vision test.  Karen was instructed to proceed to another window for her new photo.  Fortunately, Karen was not required to take the written examination even though she had studied the driver's handbook for weeks.  Karen's driver's license photograph shows her wearing her wig.  The clerk would not allow the picture be taken with the hat on.  Karen and mom were delighted that this milestone had been completed. 

Since the last chemo session on Thursday, (June 14), Karen still goes in on a weekly basis to the
infusion lab for either shots and/or labs.  Karen's blood counts continue to improve.  She is scheduled for blood tests this Friday (7/13),  Additionally, the medical staff is working with Karen's insurance provider to acquire approval for another PET scan.  Karen's doctor would like this to be performed before their next scheduled visit (07/18).  Although the nursing staff has told me that that lab tests are important, they really have Karen come in to brighten up their day.  On the last visit (07/06), the nurse, Jill, called Karen in and before the two entered into the infusion room, the laughter had begun.  As Karen sat down in one of the chair with her mom in chair next to her, Jill commented that she is delighted to see Karen and her mom.  Hugs was given.  However, the laughter continued as one of the other nurse, Kathy, chimed in about her new duty of caring for the bouquet of flowers which had been given to them two weeks ago by Karen and other family members.  Karen jokingly said to Kathy that her"green thumb" and watering the "artificial flowers" are doing the trick.  Both Jill and Kathy related that they have received so many compliments from other patients about the flowers.  As the laughter continued on, Karen noticed out of the corner her left eye, the Head Nurse was giving the look, so Karen immediately toned down the laughter.  Karen put her hands over her mouth, but Kathy and Jill kept egging Karen on.  The only good part about the infusion room is there were only four women in there receiving shots and/or infusion.  There were more nurses there than patients.

Karen will keep us updated with regards to her upcoming PET scan.  She is still suffering with neuropathy in both of her hands and she is losing some parts of her fingernails.  This condition makes it hard for her to open simple items like a  plastic bag, buttoning her blouses, etc.  With time it will eventually diminished.  Karen, however, will not be modeling for any well known jewelry companies.  Marghi refers to Karen's right fingers as "snausages."  Ha, ha, ha!!!!  Karen has taken up riding her stationary bike for about 8 to 10 minutes (approx. 3 miles per days) over the last two weeks.  She is slowly getting back to her exercise routine,

For all the readers and family members, Karen and Mom are very appreciative of your thoughts and prayers.  It most certainly has made a portion of this journey easier to travel.   Thank you and love to each and everyone of you.  We will keep you in our prayers also. 

P.S. We stand as tall as angels when we kneel to help a friend

Friday, June 22, 2012

Hi readers,

Karen went through her usual tiredness and soreness from the last round of chemo and shots.  By Tuesday (06/19) this week she was feeling pretty good, so she decided to take a small token of her appreciation to the outstanding staff at the doctor's office and chemo infusion center.  Over the past two weeks Karen voiced her visions of a very special thank gift and Marghi put them into reality.  Marghi made two huge bouquets of artificial flower arrangements, and placed hand-made individual thank you cards to each staff member throughout the bouquets.  The staff at both offices were overcome with Karen 's thoughtfulness.  Karen also gave the infusion center Red Vines, Jolly Ranchers, Werthers, and a Hershey's variety packs to refill the jars of candy.  During the chemo sessions "dry mouth" is one of the side effects, and a piece of candy seems to do the trick to get the saliva juices flowing.    


On Thursday (06/21), Karen went to the chemo center for her weekly lab work.  Glad to say all of her blood numbers were where they need to be, so she was able to dodge the shots that keep them in line.  The on-duty staff were still reeling about the delightful gift Karen had given each of them on Tuesday.  They all came over to give hugs to Karen, Mom and Marghi.  They were so appreciative.  The bouquet of flowers was proudly displayed on the counter-top, and the pink thank-you ribbon had been displayed on the wall by the clock.

Karen ventured out this morning (Fri 06/22) and drove her truck to the bank and to the gas station. She did great.  While no long trips are planned for anytime within the year, I can only say "Look out world, little by little she is transforming into her old self."  LOL :o)

Karen is still coping with the neuropathy in her hands and the extreme pain in her fingernails however, the complaints are few and far between. 

Marghi is planning to go home and back to work the first part of July.  Hope to have the NoCal household back to some kind of normalcy before then.  Marghi is willing to stay or return if the situation dictates.

Your support, thoughts, and prayers over the past five months have had remarkable results.  Thank you all!  :o)

Friday, June 15, 2012

Helloooooooooooooooooo readers,

Well since the last time we blogged Karen has reached some milestones. Karen saw the doctor on Tuesday and he reiterated that Karen is doing remarkably well despite the aggressive chemo she has endured over the past 16 weeks, her weight has pretty much remained the same for the past month.  He is just amazed.  While at the doctor's office one of the chemo nurses came in with her husband, suspecting he had cancer.  On Thursday (06/14) Karen completed her last round of chemotherapy.   We found out at that time the nurse's husband did not have cancer.  We were so thankful to God for their good news.  After Karen's chemo infusion, the nurses struck up the party favors, with a tambourine, noise makers, bubbles and applause, and presented Karen with a certificate of chemo completion.  See the attached picture.


Prior to the chemo, the nurses perform routine blood test, and all of Karen's numbers were "A okay."
It was a slow day at the infusion center, as management is trying to give the nurses an extra day off. As the nurse relayed it to us, she stated, "we are trying to DISPOSE of our patients on Thursday, so more of us can have the day off."  Karen was unsure what was meant by this statement, and was glad to get out of there alive.

She went on Friday for hopefully her last Neulasta shot, the one that keeps her white blood count up.
She has to go through some more blood tests over the next two weeks, just to make sure her blood numbers are good and holding, and to check the cancer markers.  After that it, if all stays well, it will be a monthly blood test, bone enhancing shots, and the clearing of her infusion port.  She will have an entire body PET scan sometime within the next four weeks comparing the tumors prior to and after the chemo.  We are praying for the best.

After partying at the infusion center, there is no holding her back.  Karen is ready to P A R T Y. LOL :o)   Yeah right! 

Thanks for reading and your support.  May God bless you! :o)

Thursday, May 31, 2012

Helloooooo out there......

May was a very busy month filled with Mother's Day, visitors from Oklahoma, and oh yes the chemotherapy sessions and doctor's appointments.  We had a nice Mother's Day for mom by pampering her all day with gifts and food, and receiving calls from all her kids. Teresa (sis) and Kevin came that day to visit.  Marghi was able to go home and celebrate the day with her husband and her sons.  Anne (sis) took on the responsibilities of the Bradford household for Mother's Day weekend.  Louis (bro) took on the Bradford household responsibilities the following weekend 05/18-05/20, so Marghi could go with Dave and family to the annual BofA Bowling Tournament in Reno.  Louis thoroughly enjoyed staying with mom and Karen.

At the latest doctor's visit on Tuesday 05/29 the doctor informed Karen that her cancer markers, were way over 300 when she was first diagnosed, the April test checking for markers was 140. This is Great news!!!!!!!! The doctor stated Karen is doing remarkably well. He is inspired by Karen, her determination, her attitude and mental outlook, and the fact the she has attacked the situation and the pain with just a little Tylenol, now and then.

Chemo sessions went well this month.  Karen has braved through them and knows exactly what the reactions will be and when they will set in.  This second round of chemo has not been as rough on her appetite as the first round.  She is, however, experiencing neuropathy in the tips of her fingers as well as the browning of the fingernails.  Typical side effects for Taxol.  Karen has stayed true to form, she gets herself and sometimes the nurses in trouble with her levity and gut wrenching laughter.  In fact this past Wednesday, the nurse told Karen she had passed the test, referring to her blood numbers.  Later Karen and Marghi were talking about the blood test results and Karen said, "at least she (the nurse) didn't say I passed gas."  Some other nurses overheard this and they just started to laugh. 

Marghi is so grateful she is able to be with Karen through all of the chemo sessions.  It is heart breaking to see how many folks come by themselves, or are dropped off.  This past Wednesday, we met a lady who was 88 years old, she had surgery a week ago, was receiving radiation every day, and was getting her first chemo treatment on Wed.  No one there with her while the nurses tried several times to get an infusion line started, final after an hour they did, then premeds started.  Her daughter stopped by for a short minute, then left.  This poor little lady, was hungry, didn't know the ropes,  really had to use the bathroom, and there was no one with her to be her advocate.  When she finished chemo (4 hours later) we offered her a granola bar and a bottled water to tide her over.  The little lady stated Karen was very "cheerful."  (Little does that lady know LOL)   She thanked us for lunch and stated we should do it again. She made several calls to her daughter to be picked up, but never got through.  When we left she was sitting in the lobby of the medical center, still trying to reach her daughter by telephone.  It was truly heartbreaking.

AS PROMISED HERE IS THE PIX OF KAREN WITH HER NEW HAIR.  LOOKS GREAT



Thanks to everyone for reading the blog and most definitely for keeping us in your thoughts and prayers.  They truly are very important to us.  :o)

Wednesday, May 16, 2012

Greetings:
Karen went to the doctor on Monday and got the okay to continue with her Taxol chemo treatments.  She had her second Taxol infusion on Tuesday, which took about 3-1/2 hours.  Karen faired well.  No immediate reactions to the Taxol.  Karen went today for her Neulasta shot which assist with keeping her blood numbers up where they need to be.  Lately her numbers have been in the appropriate ranges.  While at the infusion center, one of the nurses again reminded Karen to keep the laughter down, this time however she was sitting in the waiting room, minding her own business.  Karen checked for the "NO LEVITY OR LAUGHTER" signs to no avail.  What gives???? After the shot we went and picked up the wig at Wigs R You.  It is a brown short cut do, looks very becoming and sassy.  The sales lady there must have been been on something, she stated, " Karen you are such a delightful person." Karen was as shocked as I was, she had never been complimented with those descriptive words before. LOL  She pegged my right, she gave me an angel pin, don't know if she thought I was an angel, or it is something for me to emulate. LOL   Mom was surprised when Karen walked in the door, but Mom gave her approval saying "she looks so young with it on."  Somehow I will get a pic on the blog. 
Thanks for following.  Love to all.  :o)

Monday, May 7, 2012

Hi all,

The past few days were very hard for Karen, she has been extremely tired, and aches all over.  The Taxol chemotherapy causes arthralgia and myalgia symptoms.  Karen immediately experienced neuropathy in her fingers.  She describes it as having jammed her thumb nails, ouch!, yes very painful.
:-(

Due to feeling poorly Karen did not want to keep her appointment for the wig, however she was convinced to go to the wig shop on Friday and had a great time.  Ann at Wigs R You in Roseville was so helpful and comforting to Karen.  Karen tried on at least 5 wigs of varying styles and colors, decided on one, ordered it and will have it by next week.  Yes, a picture will be posted. 

Karen went to the infusion/lab center today to have blood work done and get an Xgeva shot.  Karen numbers are off the chart in a good way which is absolutely great news.  The wonderful nurses at the infusion/lab center are always so happy to see Karen, as they really enjoy Karen's attitude about her situation and the tall tales she tells.
 
By the way, we talked with nurse Jill about the thermometers as mentioned in the previous post, she just laughed at us.  It prompted her to tell us a funny story when she was on vacation in Pennsylvania visiting her husband's family.  In a rush to get ready to visit her brother-in-law, she grabbed a tube put it on her toothbrush and began to brush her teeth.  She stated the toothpaste tasted funny and her mouth was foaming like heck.  She kept spitting out the foam but it just kept getting worse and worse.  She checked the tube of toothpaste, only to discover she had grabbed the Preparation H.  She went over to her brother-in-laws, and every so often she had to excuse herself to go to the restroom and rinse the foam out of her mouth caused from drinking fluids and saliva.  As Jill put it, needless to say "her mouth swelling and oral hemorrhoids were in check." LOL

Thanks for the cards, letters and calls, we are blessed with all of your thoughts and well wishes.  We pray and thank God everyday for the fantastic support of family and friends. :o)

Wednesday, May 2, 2012

Hi readers, if you are still following...so sorry we haven't posted anything in two weeks.  Karen has been going to the doctor and to labs for test.  Her blood numbers and other vitals have been good, which are a blessing since she is to start her next round of chemo on 04/30.

On Saturday (04/28), the neighborhood had a garage sale, Karen, although she stayed in the house, kept watch on Marghi and Mom to make sure they did not sell the clothes off her back.  Mom has been known to sell things, that weren't actually for sale.  Hehehehehe

On Monday (04/30) Karen had her first round of Taxol chemotherapy.  We were gone from the house nearly five hours, with the chemo taking more than 3-1/2 hours due to air bubbles getting in to the IV line.  They said the air bubbles posed no risk, but the IV machine would stop dripping.   I repeat they (the nurses) said it posed no risk, but we all know how Karen deals with air heads, and she was not willing to join that group.  Prior to the Taxol, Karen was infused with four other pre-meds to ward off any of the immediate side effects from the Taxol, rash, breathing and heart problems, nausea and vomiting.  The days following the chemo Karen has felt very tired, and has slept quite a bit.  She has talked with some of you over the telephone, which she has truly enjoyed.  She has kinda reverted to early childhood, eat, poop, and sleep.

As you may or may not know, Karen's temperature plays an important part in the chemo process.  Too low or too high causes trouble and can delay chemo treatments, so we are constantly taking her temperature.  Being old fashion we use the "old glass/mercury, hard to read" thermometers.  These thermometers are left overs from when Mom was a Licensed Vocational Nurse (LVN) back in the 70's & 80's.   Question? ... what's the difference between an oral and a rectal thermometer, other than the obvious.  I took Karen temp orally with both and the temp reading was the same.  Is that normal? Or other than csncer, is there something amiss with Karen?  LOL FOTG :o)

Scheduled an appointment with Wigs R Us for Friday (05/04).  More to follow on this.

Thanks to all of you for reading, your resonses, your thoughts, prayers and well wishes.  They are truly appreciated.  If there is other information you would like to know, let us know.

Tuesday, April 17, 2012

Greetings:  Karen was to the doctor on Monday, after having been there for Chemo on Friday, and shots on Saturday and Sunday.  Too put it lightly, she is completely whipped out.  The shots are to help her blood counts, but they take all of her energy and put her on an emotional roller coaster.  She pretty much has slept the last two days and has no appetite.  While at the doctor's office we were able to schedule tentative appointments through the middle of June.  Karen mustered up enough energy to go to the DMV this morning and secure a much needed disabled placard.  We were in and out in less than 10 minutes.  Kudos to the DMV staff at the Rocklin office.   It was back home and to bed.  Keep Karen in your prayers.  Thanks! :o)

Friday, April 13, 2012

Hi readers and followers.  Hope you all had a glorious and happy Easter.  Karen, Mom and I celebrated the day with our usual Sunday Mass viewed on television as well as watching the Pope's Mass from the Vatican.  We ate the delicious food that Lindsay sent us from Omaha Steaks.  The neighbor next door, Jeanne, brought over a home-made carrot cake, about a 1/4 sheet.  She spent quite some time visiting with us on Easter.  Here comes the good part, Karen is not a fan of carrot cake, but for Mom and I that's another story.  By Tuesday, Mom and I had eaten the entire 1/4 sheet of cake.  Hmmmm hmmm good!  With that we defrosted the carrot cake that came with the Omaha Steaks.  By Wednesday afternoon half of it was gone.  We put the remaining half on another plate to make room in the frig.  Later on Wednesday night, after prayers, I went to get a piece and low and behold Mom had eaten the remaining half.  Needless to say carrot cake doesn't have a chance at this household.

We went to see the Hemo/Onco Dr. on Monday, he reassured Karen that what she is feeling is normal, and in fact he stated she is doing great, doing better then most.  Her the weight loss has stopped, she hasn't run a fever, and her blood pressure numbers are normal.  The rest of the week we prepared for the 4th round of chemo scheduled on Friday 04/13. 

Karen did well today with the chemo, it took a little longer however about 3-1/2 hours. She and I did get in trouble for making the staff laugh to much and too loud by telling some old stories about ourselves.  It was great service, the ratio was 2 nurses to 1 patient, and somebody had to keep everyone awake, Karen and I took on that role. We didn't need to be asked, our combined past experience at the CHP has taught us, "you see a need you handle it."  Okay back to the serious side of things.  Because of low blood counts and chemo drug interactions, Karen needs to get a shot of Procrit tomorrow (Sat 04/14) in the early a.m, and a shot of Neulasta on Sunday (04/15) in the a.m.  She will see the Dr again on Monday.  We will have been to the Dr's office 4 days in a row.  I honestly think Karen just likes she being chauffeured around town.  LOL  Just as we got use to the timeline of the side effects of this chemo treatment (Adriamycin and Cytoxin) it was the last of this kind.  As the caregiver, who knows what I will be up against with the new chemo (Taxol) that will start on 04/27.  Karen and I are up to the challenge.  Still working on the pics of Karen and the hats. 

Heard from some more folks at the CHP.  Thanks to all of you for the cards and letters, thoughts and prayers. :o)

Thursday, April 5, 2012

Well Karen underwent her 3rd round of chemotherapy on Friday 03/30 and Saturday 03/31.  She has felt downright tired and has laid in bed and slept most of the week.  We controlled her nausea and resulting anxiety with various drugs.  Today we went for the follow up lab work and bone shot only to find out once again that her numbers are in the dump.  She will go again tomorrow for another shot to help her blood numbers and hopefully provide her some energy.  Karen has been a real "trooper" these past six weeks of treatment. 
I needed some help, since Mom came down with a serious infection (Klebsiella Oxytoca) in her right leg.  I took her to the ER on Sunday 3/25 and to the doctor on 3/26.  Anne came up to help with taking Mom to another doctor appointment while I took Karen to hers on 03/30.  Mom has received two shots and is on a 14 days regiment of antibiotics, in the meantime I have to make sure Karen does not catch the bugs.
This past Sunday (04/01) Teresa came by colored my hair and took me for a short outing while Mom and Karen slept.  No worries, fortunately Dave was here to babysit them.  He also tended to lots of tasks on Mom's list of "Things "To Do." He left in the wee hours of the morning today.  We got to spend sometime together and had a wonderful 8th wedding anniversary yesterday. Ann came and stayed with Mom and Karen while Dave and I went out.
Both Mom and Karen have doctor appointments on Friday, so Anne is staying the night to take Mom to her appointment. 
We were surprised to find a large box at the front door on Tuesday afternoon.  Turns out Lindsay sent us a complete dinner from Omaha Steaks that we plan to heat up and fix on Easter Sunday.  On Wednesday another box arrived from the boys, (Carl, Chad and Casey) They sent us flowers for Easter, which will decorate the table at Sunday's dinner feast.  Big Thanks to all of you!!!! 
Lastly, the news about Karen is travelling on the CHP grapevine, as former friends (Stephanie Helms, Pat Daly & Chuck Shipley) contacted us this week.  It was nice to hear from them and know that the CHP family is wishing Karen all the best in this journey.
In closing, we are wishing you a Joyous and Happy Easter. :o)  Thanks for reading and for posting comments.  It is greatly appreciated and is the highlight of our days.

Wednesday, March 28, 2012

Sorry readers, there hasn't been much to report and update you on.  There are some things that Karen won't let me blog, I guess I would have to start my own blog to describe the caregiver's point of view, but who would interested in that. LOL  Karen is doing well as she revs up for her 3rd round of chemo scheduled for Friday 03/30.  We had a visit from brother Louis from Saturday 03/24 to Wednesday 03/28.  He is sure a delight to have around.  Mom put him to work for all those things Karen is unable to do LOL and the caregiver did not contract to do, again LOL, like lawn cutting, vacuuming, dusting, laundry, etc.  Anne came to visit on Tuesday 03/27.  The five of us shared food from Panda Express for yesterday's dinner. It was so delicious.  When it came time to eat our fortune cookies Louis advised that in his family they always add the phrase "IN BED" to whatever the fortune is.  So we did as he suggested and tried it.  It made for some great laughs.   Karen's fortune was "Be carerful and systematic in your business arrangements IN BED." But Mom's was the clincher "You will be a great success both in business and socially IN BED."  Gotta go have to go get our Mega Million Lottery tickets for the $476 million draw on Friday.  Hate standing in the long lines of losers. LOL  Karen swears the win would make her feel a whole lot better, she would at least like the chance to see if it does.  Yes we will share if we win the big pot. :o)

Monday, March 19, 2012

With the 2nd round of chemo on Thursday and a Neulasta shot on Friday Karen was pretty much toast this past weekend.  By Saturday she had nausea, was a little cranky and slept alot.  With all that she is going through she is allowed to be cranky once in a while. Lol.  Teresa came by on Sunday and visited with Karen for quite some time in between making home-made Swedish Rye Bread from an old family recipe.  We ate some of the bread with dinner tonight it was delicious!!!! I made Karen some turbans out of old t-shirts to help with the hair loss situation.  As of today most of her hair has fallen out, fortunately the hats and head coverings she ordered last week arrived today.  Karen tried on all that she bought (six in all) and she looks "darling" in them.  Yes I said darling.  I have never seen Karen in anything but a baseball cap in the past.  The hats and head coverings are assorted colors and have a feminine flair.  If she sits still long enough I will take a picture and post it so you can see what I mean.  No promises though, as you well know you have to be one step ahead of Karen at all times as she does not like her picture taken.  We looking into purchasing a wig as well.  Can't decide on the color or style.  I say something wild, and Karen says lets keep looking.  I offered to shave my head, but Karen says no, that we would look like two cue-balls riding around in the car.  Thanks for reading.  Most of all thanks for the cards and well wishes, they are truly appreciated.  :o)

Thursday, March 15, 2012

What a great day.  Karen woke up with vim and vigor.  She ate breakfast, bathed, dressed and got herself ready for her 2nd round of chemotherapy today.  She had an excellent atttitude and very little apprehension.  She acted like an old pro at this.  It was amazing to watch her.  She has started to lose her hair, and is hoping it will come back in blond and wavy so she can be like the other Clark girls.  For those of you that don't know, she was the only girl with dark hair in the family growing up.  She considered herself the outcast, we considered her downright different. Lol.  The past few days have been wonderful, and we realize that is due to the prayers and wishes to our Lord from so many friends and family.  Thanks you all.  It is proof he answers prayers. :o)

Monday, March 12, 2012

The past few days have been great ones for Karen.  On Saturday she had a visit from the former neighbors across the street (Priscilla & Dave) and was emotional at first then very happy to see them.  They provided Karen the encouragement she needed at that moment.  The potted flowers they brought were beautiful and were the icing on the cake.  On Sunday Anne came by with delicious food from the Mecca Restaurant near her home in Pittsburg.  Karen was able to enjoy taquitos and guacamoto.  That's right she asked for guacamoto and no hot chipoto sauce for her taquitios. I think she has been watching way too much "..Ninja..." on the G4 channel or she is learning the Japanese that is spoken on the show.  Either way, it was a great laugh for us.  She let out the biggest belly laugh once she realized what she had said.  As for today she full of energy and hungry, kinda took on her "bossy in control" attitude, which has me jumping to all of her demands. LOL.  Her nephew Jeff stopped by today on his way back to Utah.  Again she enjoyed the time spent with him.  She received another hilarious card from Joanne, which had us all in stitches.  Joanne has the best sense of picking a card and adding to the verses or theme of the card.  Each one received is a bright spot and forever cherished.  Thanks to all for your continued prayers and thoughts.  Keep the comments coming on the blog, Karen treasures all of them.  XOXO :o)

Thursday, March 8, 2012

Karen had her labs yesterday and the results were not good.  She has nearly lost her white blood counts, just 0.55 and her platlets have decreased by more than half down to 208. She runs a fever from time to time.  The doctor presecribed a second round of anitbiotics to help her through this.  She also received an Xgeva shot to help with the integrity of her bones.  And yes the side effects of pains in her bones and joints from the Xgeve has begun to set in.  It is quite amazing that drugs that are to do so much good in the long run, sure do make you feel just plain lousy along the run.... Had a surprise visit from nephew Jeff, it was nice to see him and his short visit was a highlight for Karen this evening.   Thank to the followers of this blog.  You kind words of encourangement are greatly appreciated.  Lot of love XOXOXO :o)

Tuesday, March 6, 2012

The past few days have been very trying for Karen.  She becomes anxious from the nausea, however, Ativan seems to help for both symptoms.  Only one more day to go with the antibiotics for the suspected infection from last Monday, Karen still continues to run a slight fever (99.8) each day.  Talked with Dr. Reddy, the Hematologist/Oncologist, at an appointment yesterday (03/05), he states as long as Karen's fever does not go over 100 she is okay.  He reassured her that everything she is experiencing are the common side effects for the intense and aggressive chemo treatment she is receiving, which was very good for Karen to hear.  Labs and bone meds scheduled for tomorrow.  Just praying that will go well and Karen will not have any other side effects. Thanks to you all for your support, thoughts and prayers.  Love you much XOXOXO :o)     

Saturday, March 3, 2012

Today (03/03) has been a pretty tough and rough day for Karen as she had a slight fever and elevated BP.  She did get up to eat Special K cereal along with her special fruit drink this morning, and at mid morning she took a short walk in the back yard to enjoy the beautiful sunny weather, she is whipped. has no energy and little to no appetite.   We had been told she would have days like this, I guess we assumed they we be closer to the day of chemo and not 2 - 3 days later.  Yesterday, Susan, the next door neighbor, cut spring flowers in her garden and brought a small bouquet to Karen.  They were beautiful.  Karen also received the cushion from brother Phil, it fits perfectly and definitely makes the wheelchair seat more comfortable.  I cannot say it enough "THANKS" to all of you reading this blog for your prayers, thoughts and expressions of support for Karen.  Be it cards, flowers, cushions, calls, etc., they all make the day brighter and this bumpy road a little easier to handle.  Thanks XOXOXO :o)

Thursday, March 1, 2012

Today, has been a great day for Karen.  She has not had any of the expected ails from the chemo (adriamycin & cytoxan) so far.  We went to the Infusion Center so Karen could get a shot today (neulasta) to keep her white count up..  She has a great appetite and has been joining me and Mom at the dinner table for her meals. 
FYI, she has a great team of doctors, however she has meet the most friendly, supportive and uplifiting group of nurses at the Infusion Center.  Kudos to Cathy, Jill, Julie, Lucia, Claudia  and David for taking such good care of Karen.  Although the chemo decision was done with some hesitation, we somehow missed the chemo education class, and the first scheduled chemo day did not gone as anticipated, you all helped Karen to talk about her anxiety and made her comfortable by explaining everything you were doing and what to expect.  You guys are AWESOME.  Thanks!

Wednesday, February 29, 2012

Karen woke up feeling hungry and full of energy to met her chemo head-on.  She received her first round of chemo today (02/29) starting at 11:30 and finished around 2:30.  She did great and is still feeling pretty "spunky" right now due to the other meds they gave her in addition to the two main cancer meds.  She will continue the antibiotics for another 8 days, and will have a chemo shot tomorrow (03/01)  This was a great day, first in a long while where Karen has felt like her old self.  Still not running marathons, or working in the garage on projects, but she did great...a real "Trooper."  Karen expresses her thanks to everyone reading this.  The cards, flowers, letters, calls, good wishes and prayers are greatly appreciated by her and her assistants aka "Mom" and "Marghi"  Thanks to all of you. Love you much!  XOXOXO

Monday, February 27, 2012

Karen was all set for her first round of chemo today (02/27)  She was running a fever so no chemo.  Several tests were run and cultures taken to figure out what going on.  The chemo nurse did hydrate Karen, thinking that may be the cause of the fever.  Karen was prescribed a very strong antibiotic to knock out the suspected infection.  Bottomline no chemo today, kinda felt like getting ready for the big day and being left at the alter.  It was such a let down.